In the fight of her life
To look at her, you couldn’t tell that Tamika Pratt, 36, is battling a disease that can cause life-threatening bleeding. A disease that is rare in people under age 40, and which generally occurs around age 60 and is a disease that is more common in men than women.
The mother of two is fighting for her life as she battles acute myeloid leukemia (AML), a cancer that starts inside bone marrow, the soft tissue inside bones that helps form blood cells. It’s a cancer that grows from cells that would normally turn into white blood cells. The bone marrow, which helps the body fight infections, eventually stops working correctly. People with AML become more prone to infections and have an increased risk for bleeding as the numbers of healthy blood cells decrease. And it develops quickly, replacing healthy blood cells.
Pratt, a mother of two, Davonte, 17 and Jermika, 11 was diagnosed with the disease in September 2010. Since then her life has been a revolving door of hospital stays for chemotherapy treatment and blood transfusions. (She’s had so many transfusions that she’s stopped counting). And she’s been in and out of remission. What she really needs to turn the tide of this disease is a bone marrow transplant. And she and her family have tried a few inventive ways to get her plight before the public, including offering cell phone cards in $5 and $10 denominations to the public in an effort to get them to donate blood to her cause. Most recently, Pratt took to the Internet to explain her plight in hopes of identifying a bone marrow transplant donor to hopefully provide her with a cure for the aggressive cancer that she has.
She is registered with bone marrow donor programs, but a compatible donor has not been found. And doctors in the United States have told her that the percentage for black Americans in the registry is very low.
“For me, time is running out. This is why I have decided to reach out to my Bahamian people for bone marrow. You could save my life,” she said in her Internet appeal.
People between the ages of 18 and 60, in good general health who aren’t greatly overweight or have or at a high risk for contracting HIV can be a potential donor. Even people with elevated blood pressure (hypertension) can still be a donor, once their hypertension is well controlled by medication. But they need to get tested to see if their bone marrow matches with Pratt’s, through a simple swab of their cheek. The test costs approximate $200, but if you don’t want to get tested in her e-mail, Pratt asks people to help someone with funding who would like to be tested to cover the cost of the test.
Symptoms of AML include bleeding from the nose, bleeding gums, bruising, bone pain or tenderness, fatigue, fever, heavy menstrual periods, pallor, shortness of breath (gets worse with exercise), skin rash or lesion, swollen gums (which is very rare) and weight loss.
At the time of Pratt’s diagnosis she said she was just feeling extremely tired all the time. During her regular physical, her results showed that her counts were not normal. She was referred to a hematologist who did a bone marrow biopsy. It was determined she had myelodysplastic syndrome [MDS], or what is known as pre-leukemia. She was not worried at that point because she was told it was treatable, but that she had to seek treatment abroad. Less than a month later she had traveled to the United States to seek medical care. It was there that she was given a second bone marrow biopsy. The result this time was that the aggressive cancer had moved beyond MDS and she had leukemia.
The mother of two spent five weeks in hospital receiving chemotherapy treatments. From then to now, hospitals at home and in the United States have been a “revolving door” for her.
“I knew from the beginning that I would have to have a bone marrow transplant, but I was hoping the chemotherapy treatments would work and it wouldn’t get to that,” said Pratt. “But since this is my third relapse, I said I’d better try see what I could do for myself, so this is something I’m doing on my own trying to find people. I don’t know where I’m going to get the money from, but somehow it’s going to happen,” said Pratt. People wishing to be tested have to pay out of their own pocket, or Pratt will have to “pony up” the cash and pay for them.
Sadly, she does not have any full siblings that can be tested to donate marrow. She has two half-siblings born to her mother, and another 10 half-siblings from her father who have not been tested, because there is only a one-percent chance they would be a match for her. Her mother and one sister have both been tested, but they are still waiting on the results. Her father is deceased.
Most of the time, a doctor cannot tell what caused AML, but there are things that they believe lead to some types of leukemia, including AML, like certain chemicals, certain chemotherapy drugs or radiation. It is also believed that problems with genes may also play a role in the development of AML and that the risk increases if a person has a weakened immune system due to organ transplant, or certain blood disorders.
Since her diagnosis, Pratt said she has not cried once or adopted a woe is me attitude. She says she has accepted what has happened and is taking one day at a time. She says while she tries to maintain a smile on her face and be upbeat, she admits to having her moments.
“Sometimes the devil comes in my mind,” she said. “Christmas gone I went and picked up little things, and the devil came in my mind and said, ‘Girl, what you picking up these things for? You ain’t going to live to see Christmas,’ but I simply said, ‘Devil, you’re a liar.’ My son is graduating high school in June and sometimes I wonder if I will be there, but I’m going to be there,” she said confidently.
As she searches for a bone marrow donor, she is appealing to Bahamians to donate blood to the hospitals because getting transfusions which has been getting her by, has also been a problem for her.
“I’m just pleading to the public to come forward … and I wouldn’t even go as far as the bone marrow transplant. If they could just put themselves in somebody else’s shoe and commit to once a month donating a pint of blood, they could save somebody’s life,” she said. “If it don’t hit them home, they don’t feel like they need to do it. And I didn’t realize how bad it was until it happened to me.”
She admits to not knowing how important it is to be a blood donor until she found herself in the situation she is now in needing to have blood transfusions performed almost every other week.
Pratt’s battle has also been expensive and she is thankful for her husband’s insurance coverage. But exactly how much she has left of that gives her cause for concern.
“I’m scared to even try to add up the amount I’ve spent. I’m even scared to call the insurance company to find out how much coverage I have left. My first bill from [the U.S.-based facility] was almost $200,000 for the five weeks I spent there. I have my hospital bill there, my hospital bill here, and I have my doctor bill here. I have stopped asking. I’m afraid to ask,” she says.
As she looks forward to her future she says she has no reason not to smile and be depressed because God has been good to her. And her husband, Jermaine Pratt stands by her. Plus she does everything she can to keep up a happy front for her children which she said was challenging initially because she tried to keep her illness from them.
“I didn’t want to burden them down, so that was a challenge for me. Even when I went away the first time I told them I went away to do testing, but not what was going on with me. And that really had me stressed. After a while I told them separately and explained it to them differently, taking into account their ages. My daughter was pretty good, and the only thing my son wanted to know was whether it would happen to him too. But I told him no that he would be fine. They handled it so well. I didn’t give them enough credit. Sometimes my son comes to me with questions, and once I answer him, he’s fine.
As she searches for a bone marrow donor, in her fight to live, Pratt has been thrown a number of curve balls, including losing her job in the middle of 2011, which she says she’s understanding of because she realizes her employer’s office had to continue to run and her home was burgled. Thieves made off with money she had in a drawer to pay for an airline ticket to receive treatment. That was followed by her husband’s car being broken into.